Tag Archives: aging parents

The Olde Buzzard and the Easter bunny

Standard

After my mother died we put my father in a home.

Funny how that sounds like a confession! It sounds like abandonment, like kids who don’t care and don’t want to be bothered with a dotty, demanding old man.

In fact it was the best we could do for him. The home – actually two houses on adjoining suburban lots – was a little shabby, but the lawn was green and mowed smooth enough for walkers and wheelchairs, and the tree between the houses was huge, with comfortable chairs set out in the shade. The caregivers were kind. The food was delicious and plentiful. It didn’t feel like an institution, but it was safe, staffed by people who understood how to care for people with his condition.

He had a little room to himself that opened out onto a grassy area. Outside the sliding glass door we put potted plants that used to stand on their stoep – his and Marmeee’s – and a small clay garden gnome that my sister the Kat had given them. The room itself was very small, but we made it big with the framed photographs from their trips to America, and the life-size photograph of the first (and last) trout Marmeee ever fished for, the intensely colorful blanket she had crocheted on the bed, a few books that we hoped he might still be able to read. You know … the random odds and ends that one hopes, against all odds, will make a place home.

Lindt Easter bunny

Oh, and a chocolate Easter bunny. That was a housewarming gift from me; of all his children, I’m the one who has inherited his chocaholic genes in their most potent form. He loved plain chocolate with licorice shoelaces, and as a child I gave him some in a brown paper bag every birthday – and then demanded my share, which he would eke out with a stingy hand. You haven’t been able to get licorice shoelaces for years, but he was happy with chocolate on its own – always plain; he didn’t want any potential chocolate space in the slab taken up by nuts or raisins or other junk.

But that was for everyday munching. Everyone knows Easter chocolate is better – a special treat, guaranteed to make any situation more bearable! (Actually, in the US Easter chocolate mostly sucks. But this was in South Africa, and anyway it was a Lindt bunny.)

I put it right next to his bed where he couldn’t miss it, and imagined him nibbling on it on his first night in his new bed. But when I visited him the next day it was still there, untouched.

I picked it up and brandished it at him. “Oy! You didn’t eat your bunny!” I said.

He blinked at it bemusedly. “Is that mine?”

“Yes, you silly nit! That’s why it’s next to your bed!”

He looked down at the bed he was sitting on (there was space for only one chair in his room) and fingered the crocheted blanket. “Oh! Is this my bed? This looks like the blanket Mom made.”

“Yes, Dad,” I replied gently. “This is your bed. You live here now. And this -” I brandished the bunny at him – “is your own chocolate Easter bunny! You must eat it before it gets old and yucky.”

“It’s an Easter bunny? Well, when is Easter then?” he asked.

“It was a few weeks ago. Never mind about Easter – we’ve already celebrated that. But the store had a bunch of leftover chocolate bunnies on special so I got you one.”

He took it, stroked the ribbon with his forefinger. Said, “I think I’d better save this for Easter. It’s so pretty… It wouldn’t be right to eat it on an ordinary day.”

The next time I visited I took a slab of plain Cadbury milk chocolate, which I put into the top drawer of his bedside table, where he had no difficulty finding it. The bunny was still there … and it was still there a week later when I went to say goodbye before flying back home to Washington. I wonder whether he ever ate it? I like to think that someone eventually slipped off the red ribbon, peeled away the gold paper, and shared it with him. I like to think the taste of good chocolate melting on his tongue brought him a moment of simple pleasure.

But if my sister the Egg found it when she went to clear out his room, and either ate it or gave it away … well, that’s okay too. At least it didn’t sit there long enough to get stale.

Advertisements

The envelope

Standard

I don’t know why I wanted – no, didn’t want, absolutely did not want, but needed – to see my mother’s body. It’s not as though her death was a surprise. Although it happened sooner than expected, I was not in denial, I didn’t need proof … and I had a gut-deep dread at the thought of looking at her, facing the oozing reality of death doing its work inside her. I couldn’t shake the fear that she might be swollen, or discolored, or just fundamentally dead-looking. Forgive me for saying this … I imagined she might smell.

I knew these fears were irrational and silly – we of the first world are shielded from the obnoxious aspects of death. It has become sad but pretty. We have a supermarket-sized range of choices as to how we hide the evidence of our mortality, from worm-defying embalming, to composting (my preferred option. Marmeee would have chosen it too, but we’d already cremated her by the time I learned it was possible – and I still don’t know whether it’s done in South Africa).

HOYA (2).JPG

Things Marmeee loved: Gardens and gardening and South African native plants. She and her brothers sponsored a bench in Kirstenbosch Garden, in Cape Town, in memory of my grandmother, who used to work there. We – my siblings and I – will put one at Walter Sisulu Nature Reserve, outside Johannesburg, for sitting on while remembering her and the Olde Buzzard. This picture is of the Hoya vine that her mother started from a cutting, and that Marmeee cherished for 50 years.

And yet, despite all logic, the thought of looking at my mother’s dead body filled me with cringing dismay. My resistance was just a little less powerful than the compulsion I felt to see it. I remembered all the stories I’d read or heard of near-death or out-of-body experiences, and imagined her disincorporated self hanging around, waiting for me to come and … what? I don’t know. Pay my final respects?

As I write this I can almost hear the derisive hoot of laughter with which she’d have greeted such an idea. “Your respects?” she’d have exclaimed. “You’ve never been respectful in your life. You call me fubsy!” Which is only partly true. I may have been quite good at concealing my respect for her, but she knew very well it was there. As for fubsy … well, she was, and so am I. It’s a Tookish trait!

Well, I digress. I’d have preferred to get The Viewing over and done with right away, but thanks to a missed flight and then a 12-hour delay in Heathrow I didn’t reach Johannesburg until Sunday evening, when the undertaker was closed.

The next day, Monday, I met my father and my sisters, the Egg and the Kat, at the Kat-House, to go through Marmeee’s clothes and choose something pretty for her to wear. The Kat chose a white blouse with embroidered giraffes that she had given her. We added a pair of cotton capris and some underwear. I vetoed shoes – who wears shoes when you’re lying down? – but insisted on socks to keep her toes warm. The Old Buzzard chose her most beautiful shawl – a big, soft, fringed square in her signature shades of grey, blue and lilac.

On Tuesday the Egg, the Kat and I took the clothes to the undertaker. We asked for a simple pine box and a cremation, definitely no embalming, no fuss. No, we didn’t wish to attend the cremation. But … I took a deep breath. “I would like to see her,” I said. They said they would have her ready for me the following day.

On Wednesday morning my bestie, Twiglet, picked me up. I made her promise to come in with me. “I’m scared,” I told her.

“Don’t be. It’ll be okay – you’ll see,” she replied gently.

“I’ve never seen a human dead body before,” I explained. “And this is my mother!”

“My Mom was my first too,” she said.

At the mortuary, the receptionist called a man in a black suit to lead us to the viewing room. His expression was somber, and it bothered me that he seemed sadder than I was. I was too anxious to be sad. I had absolutely no idea what I would do, how I would react. Would I sob hysterically? Fling myself on her coffin? Laugh – as I so hideously did when I was 12 years old and told my classmates my little dog had died, run over by a car, and they all thought I was an awful person because the only expression my face remembered for days after it happened was a ghastly rictal grin? Our escort opened the door to the viewing room, then stepped back to wait in the hallway, head bowed and hands quietly folded.

The room was bright and spacious, with curved rows of empty seats and large windows. Near the front, resting on a dais, was the coffin – pale, unvarnished pine, with rope handles. Although plain it was nicely made – sturdy, with rounded edges and a few simple carved details. Viewed from the doorway you couldn’t see the coffin shape, and it looked like something my mother might have chosen to keep on her back stoep – an attractive box for storing gardening tools that was also a good height for sitting upon with a cup of tea.

I walked about halfway down the aisle between the chairs, then sat down. “What am I supposed to do?” I asked Twiglet. “I don’t even know how I’m supposed to feel.” She just hugged me and waited for me to figure it out. “Okay,” I said at last. “Let’s do this.”

Things she loved - OB

Things Marmeee loved: Book stores. Coffee shops. The Olde Buzzard. Earrings, like the ones he gave her just before we took this picture.

I marched up to the coffin and looked down into it.

The woman inside was lying with her head tilted back, so that her chin jutted sharply toward the ceiling. She didn’t look entirely comfortable. I wanted to lift her head, tuck a pillow under it … but I didn’t have a pillow. Also, I was worried that if I lifted her head her whole body might rise, rigid as a plank. I don’t know how long rigor mortis lasts, and it didn’t seem appropriate to google it just then.

Her eyes were closed, and her lips were thin and stern. I wondered whether the mortician had used glue to fix them shut.

I touched her cheek. She was icy. I realized that she had been packed in bags of ice, and yanked my mind away from the reason this was necessary. I stroked her hand. It was cold… cold.

Her beautiful shawl had been tucked around her shoulders, but was a little bunched up. I patted it smooth, snugged it around her. I wondered whether I should kiss her, but I really didn’t want to.

I went back to where Twiglet was sitting and plunked down into a seat. “I don’t feel anything,” I said. “She’s not here. That over there -” I gestured toward the coffin. “It’s just an empty envelope.” Twiglet nodded, and hugged me again.

“So … okay. Let’s go,” I said. I stood to leave, but found myself wandering back to the coffin. I felt restless, vaguely ashamed that I didn’t want to cry or wail, angry that something so momentous could happen and leave me bereft of words or feelings.The shawl still didn’t look quite right. I rearranged it again, positioning it so that one of the embroidered giraffes on her blouse was visible.

“I’ll tell you one thing,” I said. “She’d be royally pissed at us for burning this shawl.”

Twiglet gave me the side-eye. “I’m sure they’d give it back if you asked them to.”

“No, I don’t want it – it’s not mine to take. But I hope someone steals it before they cremate her. She’d like that – knowing it was making another woman feel pretty.”

“Well,” Twiglet said. “Who knows? This is Africa. Maybe that’s one of the perks of the job.”

We were chuckling as we walked through the door, down the corridor, and out into the sunlit parking lot. Behind us, I knew, machinery had hummed to life and the dais, the coffin and its chilly, empty contents had sunk to the basement, out of sight. But the thought of it no longer scared me. I felt a sense of release. I was glad I had seen her body. It had served her well for many years, and so had earned our gratitude and respect, but she was no longer in it. She had written the letter of her life, signed it “With love”, and had quite clearly moved on.

valerie1

Things Marmeee loved: Me

A beautiful day

Standard
A beautiful day

I called my mother from Los Angeles Airport while waiting to board my plane. It was around 7.00pm on the Pacific coast, about 4.00am in Johannesburg, and the WhatsApp message the Kat had sent while I was en route from Seattle to LA said she was awake, and alert for the first time in several days.

She was in the cancer ward at Johannesburg’s Donald Gordon Hospital. My sisters, the Kat and the Egg, were with her. She had been there for a couple weeks already, but a bureaucratic hairball had blocked me from returning to South Africa. At last that morning someone in the Department of Home Affairs coughed up permission for me to go, and I hurled clothes into a couple of suitcases and the Hubbit drove me across the state to Seattle. We arrived just in time for me to miss my plane to Heathrow, but I found another flight that went Sea-Tac – LAX – Heathrow – JNB and took only 12 additional hours to get there.

Marmee's Baskin Robbins boob solution

Laughter. An insatiable appetite for ice cream. A bawdy sense of humor. Delight in the little things. That’s my Marmeee.

The plan for the Marmeee that day was a procedure to draw fluid from from her overburdened lungs. The revised plan for me was to arrive at Johannesburg International Airport on Sunday morning, where the Girl Child would meet me and take me straight to the hospital. After that, my sisters and I would plan where she should go to recuperate – to Hospice or to somebody’s home – until she was ready to return to the retirement complex where she lived with my father.

Plans are so easy to make. You just say them out loud, or write them down, and … voila! Life goes right on happening.

My personal short-term plan was to chivvy her off that ridiculous hospital bed and whisk her away to eat ice cream. Oh, how she loved ice cream! No matter how satisfying the feast, there was always room for ice cream because “it trickles into the interstices between the intersections of your intestines.” Her mother used to say that, and now I guess it’s my turn.

Meanwhile, at LAX, I had a pocket of time, a seat in an uncrowded corner near the boarding gate, and a WhatsApp connection. I called on the Kat’s phone. “Hello!” the Kat said. “She’s awake. Hang on, and I’ll hold the phone up to her ear.”

There was a pause, then I heard a strange hissing noise, like a tap running, or loud interference. I thought the call had dropped, and was about to dial again when I heard the Kat’s voice at a distance. “Hey, Mom, it’s Belladonna on the phone. She’s in LA, and she wants to talk to you. You ready?” I understood then that the sound I could hear was the hissing of her oxygen mask.

“Hey Ma?” I said. I paused, waiting for a response, but heard nothing but the pulsating mechanical hiss. I remembered that they’d told me she couldn’t speak. It was still my turn. “Hey there!” I said. “I’m so glad you’re awake! I’m on my way, I’ll be there soon, but I wanted to say hi, and to tell you I love you. In case you’ve forgotten.” She made a sound – something between a gasp and a groan. My chatter slammed to a stop as I strained to understand. She made the sound again. She was speaking, saying “hello”, or maybe it was “I love you”. I didn’t have to hear it; I already knew. “Hush, little Marmeee,” I said, speaking more slowly and gently now. “Don’t tire yourself. We can talk properly when I’m there. I just want you to know I’m on my way – I’ll be boarding soon – and I want to tell you why it’s taken me so long to come. I really couldn’t help the delay.”

It was important to explain because I’d promised, back in February when she was sad that it was time for me to leave, that I’d return when she needed me. And although she hadn’t asked me to come, she’d asked the Girl Child why I wasn’t there. She knew that I knew she wanted me, and while she would not have doubted my love the delay must have puzzled her. But I hadn’t wanted to tell her about the closed door at Passport Control, because I didn’t want her to worry that it might not open in time.

There was no longer any reason to worry, so I launched into a chaotic account of Belladonna’s Battle with Bureaucracy – starting with me being declared “undesirable” when I left South Africa in February because I’d stayed 22 hours past the 90 day limit on my American passport, through to the breakthrough that very morning when my heart daughter Ngalitjeng realized she knew someone who knew an influential someone who worked for the director general of Home Affairs. Sitting in the LAX departure lounge I told it as a funny story, and she smiled and smiled, her eyes sparkling above the oxygen mask. (I know this because the Kat told me so later. She and the Egg had wanted to hear what I was saying too, so they could share her amusement, but when the Kat tried to take the phone to activate the speaker Marmeee shrugged her off, clutched the phone greedily to her ear, and wouldn’t let go.)

My tale rambled as I worked at amusing her while ignoring the relentless hiss of her oxygen. At intervals incomprehensible announcements erupted from the public address system; there was no getting away from them, so I would just stop talking and let her listen to the airport noises and know that I was indeed on my way. Then the boarding calls for my flight began, and segment by segment my plane began to fill up. It was becoming difficult to keep track of the conversation, but I wasn’t ready to stop.

I told her again that I loved her, and that I would be there in time for breakfast on Sunday. I sang her the little prayer she used to sing to me each night when she put me to bed. I told her that really she didn’t need to go to such extreme lengths to get me to visit. And then I said, “But just in case you’re not faking, just in case time really is short, I want you to know you don’t have to wait for me. I’d love to see you again, but if you need to go, it’s okay. I know where you’re going, and I’ll find you there one day.” For a moment I listened to her air hiss. I let her hear my boarding call, for rows 60 to 54. I said goodbye.

She released the phone to the Kat. She was still smiling. I know this, and all that followed, because people I love have painted that day for me in words and silences, in smiles and tears, so that it is etched in my memory as clearly as if I had been there.

Seated beside her bed, my sisters chatted softly, laughing at shared memories, as the dark inched toward morning. They held ice cubes for her to suck on, and at timed intervals they allowed a carefully measured teaspoonful of water to trickle down her throat. They rubbed cream into her hands. At one point she batted irritably at her mask and the Kat said, “Is it bothering you? Does your face need a rest?” She nodded, and the Kat lifted the oxygen mask and said, “Come on – exercise your face!” She grinned broadly, then pursed and pouted her lips, wrinkled her nose, blinked her bright eyes. Later that morning the Kat pulled the mask away again and had her perform her new face dance tricks for the rest of the family.

Every four hours nurses came to massage her and turn her so that she wouldn’t develop bed sores. They changed her diaper, put ointment in her dry mouth, checked her blood pressure. She smiled with relief and gratitude.

Twiglet, the sister of my heart, arrived. “Hey, special lady,” she greeted her, “What’s this nonsense now?” She kissed her, and Marmeee beamed at her with love.

The doctor came to check on her before the procedure to suction her lungs. His shoulders sagged and his face was sad as he told them she was too weak – they couldn’t do it after all. Gently he touched her swollen hands, and told them it was time to take out the drip. Her body could no longer process fluid – it was just making her uncomfortable.

Twiglet sent the Kat and the Egg home to rest. She picked up Marmeee’s Bible and read to her. She prayed for her, and sang Amazing Grace, and was quiet while she slept.

Loving hands (2)The Girl Child arrived with the Olde Buzzard later that morning. He took her hands, kissed her, said, “You’re so beautiful, my darling. I love you so much.” Then he sat as close to her as he could, refusing the comfortable chair because he couldn’t hold her hand unless he was in the hard upright chair.

Other family members came, and she captured each in turn with her bright, clear gaze, sending love like an arrow straight from her eyes to their hearts. Embraced by a room filled by her own most dear people, she basked in their conversation, laughter, teasing. She didn’t need to speak. She had forgiven all hurts, shared all she knew, told each one she loved them. She had left no business undone.

As the day drew to a close people began to leave. They kissed her goodbye, told her they loved her, promised to return. The Olde Buzzard was shuddering with cold and exhaustion after a too-long day. Gently the Girl Child coaxed him from his seat. “Come on, Granddad – Granny needs to rest. We’ll come back tomorrow.” The Kat took him home to her little Kat-House, and got him fed, washed and settled into bed. The only company left with Marmeee were my sister-in-law Sol and her children. They chatted quietly while Marmeee dozed, and sang Christmas carols to her when she woke, “Because,” said Sol, “she likes songs about Jesus, but I don’t really know any hymns.”

After a few hours, Sol had to leave. The Egg and the Kat were on their way back to take the late night watch, and she was alone for just a little while. When my sisters were just a short distance away, a nurse called to tell them to hurry. They said her blood pressure was falling fast. The Egg telephoned Twiglet, who said, “I think it’s time to call the family. Tell them to come quickly.” The Egg sent out a series of urgent messages on WhatsApp, while the Kat slapped her foot down onto her accelerator. They flew red lights and whipped around corners and slammed into a parking space, and they ran up to the ward.

There was really no time for anyone else to come. As they watched, she fell more and more deeply asleep. Her breathing, labored when they arrived, slowed to a whisper, to silence. The pulse in her neck flickered, stopped.

It had been a beautiful day, a beautiful life, but she was tired. She had said her goodbyes. It was time to go home.

Marmeee at Sol Duc Falls, Olympic Peninsula

Running ahead of the storm

Standard

When I came home in mid-February, I was exhausted but optimistic. Marmeee was okay, for a couple years at least, probably. The Old Buzzard was losing his marbles but at a rate of only two or three a week, and his Alzheimer’s medication had transformed him into a happier, pleasanter person than he’d been in years. It was good to be back in Washington, and not too painful to be gone from my people in South Africa.

It didn’t matter that we were seven weeks into the year. I named 2016 My Year Of Reclamation, convinced that 10-and-a-bit months was all I needed to finally, at last, once and for all, turn my life around. This was the year I would have a productive vegetable garden, get serious about training Argos the Madcap Malinois, lose weight, start riding again, get our finances under control, and clean my house from top to bottom and end to end. I had a great idea for a series of fun, lightweight (but, of course, also thought-provoking) novels and I was going to start writing every day, and make money from it. And blogging. I promised myself I’d start blogging regularly every week about my fascinating life and amazing insights – you know.

collapsing like a house of cards

House of cards. (Source)

Yeah. That was the plan. I even signed up for Evernote and started a whole new super-efficient system of to do lists.

Plans are like card houses. You build them ever so carefully, handling each card with the most delicate touch as you add it to the structure. And then someone opens a window and a draft blows in and all your cards go flying.

So here it’s the end of July, and I’m looking back at the year to date and shaking my head and wondering what the fuck happened. I have been in such a horrible funk! I’ve been gobbling my way through books, most of them lightweight, easy reading or stuff I’ve read before – because even the most two-dimensional borrowed life has been more appealing than the one I’m living. I’ve been eating way too much crap, and suffering the usual consequences. All I’ve wanted to do is sleep, and when I do I wake up tired.

Depression? Well yes, but I’ve had reasons to feel sorry for myself, even without tripping over the Trump of Doom or Shillary every damn time I log onto my computer. (Seriously, America? I cannot believe that’s the best we can do!)

First, in February I accidentally overstayed my US passport’s welcome in South Africa by a whole 22 hours, and was declared an Undesirable Person and forbidden to return in under 12 months.

So then I tried to renew my South African passport, and learned that I had accidentally forfeited my South African citizenship by becoming an American citizen. I’m still trying to figure out why this was devastating, apart from the practical difficulty it caused. As someone who fears and distrusts the patriotic impulse, I should simply shrug it off with a casual “Whateverrr” … but in fact I feel robbed, and also homeless, and I’m sorry but the Land of the Free just can’t get my heart soaring the way it does under an African sky.

Then my precious Marmeee went into a downward spiral. Just before I left South Africa the oncologist told her she probably had a couple years to live … but apparently without me there to keep reminding her of this and force-feeding her chocolate milkshakes, she just … got tired, I guess. And then she died. And because of the bloody bullshit with my passport, I couldn’t be there to hold her hand. I know this was a “God thing” – I’ll explain why in another post (probably) – but it still aches.

I did manage to get through the border in time to help with her memorial and to figure out What To Do With Increasingly Dotty Dad, but while there I got sick with a deathwish-inducing flu that I didn’t shake for nearly a month. It made the 25 hour trip back a lot of fun.

Before I left we got the Old Buzzard into a home – a pleasant, homey sort of place – but instead of continuing to dole out his marbles one or two at a time he started throwing them away by the fistful. In a matter of months he went from affectionate, forgetful and occasionally grumpy, to aggressively uncooperative, to unwilling to walk and unable to speak coherently. He died a couple weeks ago. I’m not going back for the memorial, which is this coming Saturday … there’s no point, really. Today I have to write a tribute to go into the order of service, and I have no idea what to say.

I haven’t been able to grieve either of them. And mixed up in all that unexpressed grief is another deep sadness over the loss of my brother. He’s still walking around, breathing, saying things to people … but somewhere in the middle of everything else that’s been going on I learned that he hated me, has hated me for more than 30 years, has badmouthed me to people I care about – and they believed him. His claims about the way I treated him, his perceptions of who I am, have been woven into the fabric of our family dynamic – and until a few months ago I had no idea of it because the one person he never spoke to about it was me. I learned that the man I thought he was didn’t exist, the relationship I thought we had was a figment of my imagination. He has morphed from the sibling I loved most deeply and missed most painfully (even while he made my eyes roll) into The Stranger. Even if the latest nastiness “blows over”, the kind of confidence borne within mutual affection is gone. Trust is broken, and the loss feels like a death.

Sailboat in front of a tsunami

Fleeing the tsunami. (Source)

So grieving has become complicated, and I’m trying to stay ahead of it for now. Every now and then I feel tears starting to well up, but … I’m so busy, you know? If I could run away for a few days, just me and my dog, maybe then … but right now my to do list is simply too long. I don’t have the time – I don’t have the capacity – for a tsunami.

Oh – and I nearly forgot: earlier this month the Hubbit broke his arm. He tripped over his own feet, but of course he blamed my dog. Then he insisted he didn’t need xrays, didn’t need to see a doctor – so of course he ended up needing surgery. And bad tempered? Let me tell you, my guy is a generous fellow. When he’s in pain, he shares it. We all get some. So even though I got to say “I TOLD YOU SO” on several satisfying occasions, life would have been better if he’d managed to stay vertical.

Oy … this post has turned into quite the pity party. I’m sorry about that. I’ve been gone for a while, and I thought some sort of explanation was in order.

Also, here’s the thing – and I need to write this down so that I can come back as often as necessary and read it: I know that tsunami is coming. I know I can’t escape it. But I am reclaiming my faith in God – not that I lost it, but I’ve been angry, confused and resistant. I lost myself for a while. That book series I mentioned? It still looks promising, and every day I see my heroine more clearly. I like her a lot and hope you will too, when I set her loose upon the world. And the weeds didn’t completely win in my veggie garden this year. I’ve found tomatoes, cabbage, cauliflower and onions lurking out there.

As for right now this minute … I’m here, right? I’m blogging, aka writing. I’m not sure why that matters, but it does. It gives me hope.

In other words, to hell with the funk – this is still My Year of Reclamation.

So … how’s your summer going?

 

Grief postponed

Standard

My first day here, around the middle of last November, I didn’t think she’d make it to her birthday. I walked into the Fogies’ little house at the retirement complex, and there was noise and excitement and hellos, and a hug from the Old Buzzard, and the Girl Child finding a vase for the flowers I’d brought, and she stood quietly waiting behind all the fuss.

She looked so small.

I put my arms around her and it was like hugging a baby bird. So small. So fragile.

IMG_20151201_170217Those first weeks, when I sometimes wondered whether she’d even make it to Christmas… they were hard. There were days spent waiting for x-rays, for CRT scans, for medications to be ready to pick up. There were arguments with the medical aid, whose protocols  demanded this, that and the other painful and pointless test. There were tears and Serious Talks and figuring out what-to-do-about-Dad. There were visits to doctors who were compassionate but not encouraging. There was Hospice, a nurse who was warm and so kind, who gave us things to read with titles like “How to cope when someone you love is dying”.

There was oxygen. It perked her up. There was time working together on editing her book. That tired her out, some days we couldn’t manage more than a few paragraphs, but it made her smile. There were flowers. Visits from friends. Meals she enjoyed, at least for a few mouthfuls. A whole chocolate milkshake at the end of a morning’s shopping.

When we finally saw the oncologist (actually we waited only ten days for an appointment, but it felt like forever – Christmas was close, and I wanted, needed him to work a miracle and ensure she was able to celebrate) I pummeled him with questions. “Should we change her diet? Cut out sugar? What about exercise? Is it good or should she rather rest? We have a source who will sell us cannabis oil – she doesn’t like it but… will it help?”

He looked at her and said, so gently, “It doesn’t matter what you eat. You can eat as much ice cream as you like – and if you don’t feel like eating, you don’t have to. Exercise if you want to. Rest when you need to. Don’t let anyone bully you – you can try whatever magical remedies you like, but you don’t have to do anything that makes you feel bad. Rather, spend time with your family. Enjoy the time you have left.” And then he prescribed hormone therapy, since that worked 20 years ago during her second bout with breast cancer, along with various other medicinal compounds, and he went off on a skiing trip, and it was Christmas.

She celebrated with us.

At the beginning of January we went back to the oncologist. When she walked into his consulting room, still small and somehow fragile but walking on her own two little short stubby legs (sorry, Ma – you passed them on to me; I can be rude about them if I want to) his eyes lit up with surprise and pleasure. The x-rays showed that her lungs were almost clear of fluid, and she was breathing just fine. He didn’t stop beaming at her the whole time we were there.

When I came to Johannesburg in November, I thought for sure we’d be planning her funeral by January. Instead, we went on a road trip.

Look!

0114160112a

The tiny church in Reenen

1453130827812

A walk in the woods

0116160214b

A stroll on Ballito beach

0116160219b

Paddling in a rock pool

0120160059c

A visit to my nephew’s boarding school. He played one of his own compositions, which he had written specially for her.

Last week, when we visited her oncologist again, he told her to get more exercise. He said, “You’ve been really sick, and now you’re going to have to put some work into getting better.”

Of course, technically she’s still sick. Stage 4 cancer doesn’t just go away. So she uses a wheelchair if she goes anywhere that requires a lot of walking, she takes her medications, she rests often, and she spends around 12 hours a day hooked up to oxygen.

But she’s not letting a mere disease take one flicker of the sparkle out of her life. Last week she had cataract surgery, because it looks like she’ll be needing her eyes for a while yet and she doesn’t want to miss seeing anything. On Thursday, undeterred by her eye patch, we celebrated her birthday by wrapping up the edit of her book, then we went out for dinner with the rest of my siblings. On Sunday we celebrated again with a picnic for 25 friends and family at one of her favorite places, the Walter Sisulu Nature Reserve.

Just look at her.

Isn’t she lovely?

20160207_145544.jpg